In the evolving landscape of precision medicine, ensuring the ethical management and privacy of genomics data is paramount. This webinar will delve into the domain of Data Ethics & Privacy within Helix’s Precision Medicine Enterprise Strategy series, highlighting its critical importance to the success of genomic programs. Drawing on insights from the Helix Research Network – the largest precision clinical research network in North America – the series provides health system leaders with actionable strategies to build trust and navigate the complexities of genomic data governance.

Participants will explore:

• Proactive measures to safeguard genomic privacy and security
• The significance of informed consent and patient autonomy in genomic research
• Methods to ensure transparency, informed patient consent, and meaningful choice
• Strategies to address genetic discrimination and enhance regulatory compliance

Webinar Speakers:

Mary Margaret Jackson, JD, Legal Counsel, Parkview Health

KT Farley, JD, MS, CIPP/US, CHC, Chief Privacy Officer, Head of Compliance, Helix