How is my data protected?
Helix takes the protection of your data very seriously and we are taking a number of steps to ensure that it remains safe and secure. All data is encrypted at all times, whether it’s being stored or transmitted. We require our partners to use the most secure processes and technology when storing and accessing your genetic and personal information.
When you purchase a product through Helix, we only share with that partner the data required to provide you with your results. We never provide any partner with your data without your authorization.
How do I grant or limit the data I share with Helix partners?
Only the partners whose products you’ve purchased can access the relevant DNA and personal information to provide the products’ results. Additionally, you will always be informed and will have to agree to your information being shared with any partner.
If you would like to revoke a product’s access to your genetic and personal information, you can do so at any time from your Helix account settings.
What information do I share when I purchase products?
The DNA information that any single product has access to is a small fraction of the information you have sequenced. As part of the purchase process, you will be informed about the data that that product requires.
Are there any risks associated with providing a saliva sample to Helix?
The physical risks associated with providing a saliva sample are negligible. Helix is taking significant measures to protect the DNA information you are providing when you purchase a product on our platform. Therefore, the risks of inadvertent sharing or release of your DNA information are also limited.
Could using Helix make it more difficult for me to get health insurance coverage?
The Genetic Information Nondiscrimination Act of 2008 (GINA), a U.S. federal law that protects individuals from genetic discrimination in health insurance and employment, protects your genetic information from use by health insurance providers.
GINA makes it against the law for your health insurer to:
- Collect and look at your genetic information (including family medical history) before you enroll or in connection with your enrollment in a plan, or restrict your enrollment based on your genetic information;
- Ask or require that you or your family members take a genetic test;
- Consider a genetic test result as a pre-existing condition; or
- Adjust your health insurance premiums, contribution amounts or coverage terms based on your genetic information.
If you have received or purchased a genetic test, your health insurance company cannot deny you coverage or raise your premiums. However, GINA does not cover life insurance, disability insurance, or long-term care insurance. To learn more about how you are and are not protected, check out ginahelp.org.
How accurate are the products offered through Helix?
Helix geneticists perform a detailed scientific approval review of each product before they’re made available for purchase through Helix. In addition, Helix evaluates the product with respect to security, usability, and clarity of the information provided.